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Privacy Policy

This privacy policy explains what we collect when you send an enquiry, the legal basis for handling medical information, who sees it, where it is stored, how long we keep it, and how to exercise your rights.

Written by
Organ Transplant Experts
Medically reviewed by
Organ Transplant Experts
Reviewed
Updated

In short

This privacy policy covers everything Organ Transplant Abroad does with your information. In short: we collect what you choose to send us in an enquiry, including medical details and any reports you upload, and we use it to answer that enquiry and nothing else. We do not sell your data, we do not advertise to you, and we run no analytics or tracking on this website. Medical information is handled only with your explicit consent, is stored on servers in the United States, and can be deleted at your request at any time.

Who we are and what this covers

Organ Transplant Abroad is an information platform about organ and tissue transplantation, and a service that passes a patient enquiry to transplant centres for a case review. This privacy policy applies to this website and to any enquiry you send through it.

We are the data controller for the information described here, which means we decide why and how it is handled and we are the ones you can hold to this policy. The registered entity details and the address for privacy questions are set out at the end of this page.

We are not a hospital, and we do not provide medical care. When your case is sent to a transplant centre, that centre becomes a controller of your information in its own right, under its own policies and its own national law. We say which centre before anything is sent, and nothing is sent until you agree to it.

This policy is written to be read. Where a legal term matters we use it and explain it, rather than hiding the meaning. If any part of it is unclear, ask us and we will explain it — the law requires this policy to be intelligible, and a policy you cannot follow has failed at the only thing it exists to do.

  • We are the controller for the information described on this page.
  • A transplant centre becomes a separate controller once your case reaches it.
  • We name the centre before anything is sent, and send nothing without your agreement.
  • We are not a hospital and do not provide medical care.
  • Ask us if anything here is unclear; a policy you cannot follow has failed.

What we collect, and why

Everything in this table comes from you. We collect nothing about you from anywhere else.
WhatWhy we need itDo you have to give it
NameSo a coordinator can address you correctlyYes, to send an enquiry
Email addressTo reply to you in writingYes, to send an enquiry
Phone numberTo reach you about the enquiryYes, to send an enquiry
WhatsApp numberOften different from the phone number; reaching the wrong one wastes daysNo
Country you are enquiring fromIt determines which legal and regulatory rules apply to your caseNo, but it changes the answer
Preferred languageSo somebody who speaks it calls youNo
Patient ageAge affects candidacy and decides adult or paediatric routingNo
Which transplantTo send the enquiry to the right programmeNo
Whether a donor is available and their relationship to the patientLiving-donor rules are set by national law and differ everywhereNo
Medical summary, in your own wordsIt is usually the most useful thing on the whole enquiryNo
Uploaded medical reportsA transplant team cannot assess a case from a summary aloneNo
The page you enquired fromSo we know what you had been reading and can answer in contextCollected automatically
Consent recordsProof of what you agreed to and the exact wording you were shownRecorded automatically

Why we are allowed to handle medical information

Most of what a website collects is ordinary personal data. Medical information is not. Under the GDPR it is special category data, and handling it needs a second, higher justification on top of the ordinary one. This is the part of health data privacy that most policies skate over, so here it is plainly.

For your name, contact details and the fact that you enquired, our legal basis is your consent under Article 6(1)(a). You give it by ticking the boxes on the enquiry form, and you can withdraw it at any time.

For your medical summary, your uploaded reports, the patient age and anything you tell us about a donor, our legal basis is your explicit consent under Article 9(2)(a). Explicit is a higher standard than ordinary consent: it has to be a clear, specific, affirmative act, which is why the form asks separately rather than bundling everything into one tick.

For keeping this website secure and preventing abuse of the enquiry form, our legal basis is legitimate interests under Article 6(1)(f). This covers things like blocking automated submissions. It never extends to your medical information.

Where a law requires us to keep or disclose something — a tax rule, a lawful order from a court or regulator — the basis is legal obligation under Article 6(1)(c).

Two consequences follow from consent being the basis, and both are in your favour. You can withdraw it at any time, and we then stop. And you never have to justify a deletion request: if consent is what makes the processing lawful, removing consent removes the lawfulness.

  • Contact details: consent, Article 6(1)(a).
  • Medical summary, reports, patient age, donor details: explicit consent, Article 9(2)(a).
  • Website security and abuse prevention: legitimate interests, Article 6(1)(f) — never your medical data.
  • Legal and tax obligations: Article 6(1)(c).
  • Consent can be withdrawn at any time, and you never have to justify a deletion request.
  • The exact wording you agreed to is stored with your record, so it can always be reconstructed.

Who sees your information

Fewer people than you might expect, and no advertiser at any point.

Inside our team, your enquiry is seen by the coordinators handling it and by administrators who maintain the platform. Access to uploaded documents is logged: every time a document is opened, who opened it and when is recorded, so an unexplained access can be found afterwards rather than merely forbidden in advance.

Outside our team, your case is sent to a transplant centre only when you have agreed to that specific centre. We tell you which one, in which country, before anything is transmitted. Once your information reaches that hospital, it is held under the hospital's own policy and its national health law, and any request about it can also be made to them directly.

Our hosting provider stores the database and the uploaded files on our behalf. They are a processor, not a controller: they act on our instructions and cannot use your data for their own purposes.

We may disclose information if a law, a court order or a regulator lawfully requires it. We will tell you when that happens unless we are legally prohibited from telling you.

And the things we do not do, stated as flatly as we can: we do not sell your personal information, we do not share it with advertisers or data brokers, we do not use it to profile you, and we do not send marketing to people who came to us with a medical enquiry.

  • Coordinators handling your case, and platform administrators.
  • Every access to an uploaded document is logged with who and when.
  • A transplant centre, only after you agree to that named centre.
  • Our hosting provider, as a processor acting only on our instructions.
  • A court or regulator where the law requires it, and we tell you unless prohibited.
  • We never sell your data, share it with advertisers, or profile you.

Where your information is stored, and international data transfers

This matters more for a medical tourism platform than for most websites, because our readers are in Europe, Africa, Asia and the Americas while our servers are in one place, and treatment happens in a third.

Our database and our file storage run in the United States. If you are in the European Economic Area or the United Kingdom, that means your information leaves your jurisdiction as soon as you send it, which the GDPR treats as a restricted transfer under Chapter V. We rely on the European Commission's Standard Contractual Clauses with our hosting provider, together with the UK Addendum for readers in the United Kingdom.

Separately, if you agree to your case being sent to a transplant centre, your information travels to that centre's country — usually Türkiye. That transfer happens on the basis of your explicit consent to it, which is why we name the country and the centre before you decide rather than after.

We think you should know what this genuinely means rather than being reassured by a paragraph of clauses. Once information is in another country, it is subject to that country's law, including the powers its authorities have to demand access. Contractual protections reduce that risk; they do not abolish it. If that trade-off is not one you want to make, do not send medical details through this form — send us a general question instead, and we will tell you what we can without them.

  • Database and uploaded files are stored in the United States.
  • For EEA and UK readers this is a restricted transfer under Chapter V of the GDPR.
  • We rely on Standard Contractual Clauses, plus the UK Addendum where it applies.
  • Sending your case to a transplant centre moves it again, to that centre's country.
  • That second transfer happens only on your explicit consent, given after we name the centre.
  • Contractual protection reduces risk; it does not abolish it, and you are entitled to weigh that.

How long we keep things

You can ask for deletion before any of these periods expire, and we will act on it.
WhatKept forThen
An active enquiryWhile your case is open and being worked onMoves to the period below
A closed enquiryA defined period after closure, so we can answer follow-up questionsDeleted
Uploaded medical reportsThe shortest of the three — they are the most sensitive thing we holdDeleted from storage, not merely unlinked
Consent recordsAs long as the enquiry, then as evidence of what was agreedDeleted with the enquiry
An enquiry that never became a caseA short period, in case you come back to itDeleted
Administrator accounts and sign-in sessionsWhile the account is active; sessions expire on their ownDeleted with the account
Anything a law requires us to keepThe period that law specifiesDeleted when it lapses

Your privacy rights, and how to use them

  • Access: ask for a copy of everything we hold about you.
  • Rectification: have anything wrong corrected.
  • Erasure: have it deleted, and with consent as our basis you need give no reason.
  • Restriction: have us stop using it while a dispute is resolved.
  • Portability: receive what you gave us in a machine-readable form.
  • Objection: object to processing based on legitimate interests.
  • Withdraw consent: at any time, without affecting what was lawful before.
  • Complain: to your national data protection authority, and you may do so without contacting us first.
  • We answer within one month, and tell you if a complex request needs longer.
  • Using any of these rights costs nothing and never affects how your enquiry is handled.

Cookies, tracking and children

This website sets one cookie, and only administrators ever receive it: a sign-in session cookie for the staff dashboard. It is strictly necessary, it carries no advertising identifier, and it does nothing if you are not signed in as staff.

We run no analytics. There is no Google Analytics, no advertising pixel, no social media tracker, no session recorder, and no embedded third-party content that could set a cookie behind our back. That is why you are not being asked to accept cookies when you arrive: under the ePrivacy rules, a strictly necessary cookie does not need consent, and we have nothing else to ask about. If that ever changes, we will ask before setting anything, not afterwards.

On children: transplantation involves children, and a parent or guardian may well be sending an enquiry about one. Where the patient is a child, we expect the enquiry to come from a parent or guardian, and the medical information in it is the child's. It is treated with exactly the same protection as an adult's, and the rights on this page can be exercised on the child's behalf by whoever holds parental responsibility. We do not knowingly collect information directly from a child, and this website is not directed at children as an audience.

  • One cookie: a staff sign-in session. Strictly necessary, and never set for readers.
  • No analytics, no advertising pixels, no social trackers, no session recording.
  • No embedded third-party content that could set a cookie without us knowing.
  • That is why there is no cookie banner — there is nothing to consent to.
  • If we ever add tracking, we will ask first, not afterwards.
  • An enquiry about a child should come from a parent or guardian.
  • A child's medical information gets exactly the same protection as an adult's.

How we protect what you send, and what we do not yet claim

Uploaded documents are kept in private storage that is never publicly readable. They are not served from a guessable address, they are reachable only through a short-lived link generated for a signed-in coordinator, and every single access is logged. Staff passwords are stored hashed, sessions expire, and the platform separates public content from private case data at the database level rather than by convention.

One thing we will not overstate. Automated malware scanning of uploaded files is not yet in place. Our system records every uploaded document as unscanned rather than marking it clean, because a file described as scanned by nobody is worse than a file honestly marked unchecked. We would rather tell you that than let a security page imply a control that does not exist.

If you believe your information has been exposed, or you find a security weakness in this website, write to us and we will investigate. We would much rather hear it from you than not hear it. Where a breach is likely to put people at risk, we will report it to the relevant supervisory authority within 72 hours as the law requires, and tell the people affected.

  • Uploaded documents live in private storage and are never publicly readable.
  • Access is by short-lived signed link only, and every access is logged.
  • Public content and private case data are separated at the database level.
  • Automated malware scanning is not yet in place, and files are marked unscanned rather than clean.
  • Report a suspected exposure or a security weakness to us; we would rather hear it.
  • Reportable breaches go to the supervisory authority within 72 hours, and to the people affected.

If you are outside Europe

This policy is written to the GDPR standard because it is the strictest widely applicable one, and we apply it to everybody rather than offering weaker protection to readers whose national law demands less. Several regions add specific rights on top, and those apply too.

If you are in Türkiye, the Personal Data Protection Law (KVKK, Law No. 6698) governs your information, and health data is a special category under Article 6 requiring your explicit consent. A separate Turkish-law information notice and consent text applies to processing carried out there.

If you are in the United States, several states give you rights over sensitive personal information, which includes health data — California, Virginia, Colorado, Connecticut and Texas among them. We do not sell or share personal information as those laws define it, so there is nothing to opt out of, but you may still ask for access or deletion. Washington State's My Health My Data Act gives residents specific rights over consumer health data, and we honour requests made under it.

We are not a HIPAA covered entity and not a business associate of one. HIPAA governs healthcare providers, health plans and clearing houses, and we are none of those. This does not weaken your protection here — it means a different framework applies, and this policy is it.

If you are in Africa, Asia or the Gulf, your national law may add rights — Nigeria's NDPA, South Africa's POPIA, Kenya's Data Protection Act, Saudi Arabia's PDPL and the UAE's PDPL among them. Make any request under your own law and we will treat it on its merits rather than asking which statute you are relying on.

  • We apply the GDPR standard to everyone, not only to readers who can demand it.
  • Türkiye: KVKK Law No. 6698, with health data needing explicit consent under Article 6.
  • United States: state rights over sensitive personal information; we sell and share nothing.
  • Washington State: we honour My Health My Data Act requests.
  • We are not a HIPAA covered entity or business associate; a different framework applies.
  • Make a request under your own national law and we will treat it on its merits.

Contacting us, and changes to this policy

To ask about anything here, to exercise a right, or to have your enquiry and its documents deleted, write to the privacy address published at the foot of this website. Tell us what you want and enough detail to find your record — the reference number from your enquiry is the fastest route. We will not ask you for more identification than we need to be sure it is you.

We answer within one month. If a request is complex enough to need longer, we will tell you inside that month and explain why.

When we change this policy, we change the version and date at the foot of the page. If a change materially affects how we handle information you have already sent us, we will contact people with open enquiries directly rather than relying on them to re-read the page. The consent wording you agreed to is stored with your record exactly as it was shown to you, so a later edit to this page can never quietly rewrite what you agreed to.

And if you are not satisfied with how we answer, you can complain to your national data protection authority. You do not need our permission and you do not need to come to us first, though we would rather have the chance to put it right.

  • Write to the privacy address at the foot of this website.
  • Quote your enquiry reference if you have one; it is the fastest route.
  • We answer within one month, or tell you inside that month why we need longer.
  • Material changes are notified directly to people with open enquiries.
  • Your stored consent wording is what you were shown, so edits here cannot rewrite it.
  • You may complain to your data protection authority without contacting us first.

Common questions

Do I have to upload medical reports to get an answer?

No. You can send an enquiry with no medical details at all and we will tell you what we can — which centres run the programme, what the pathway looks like, what a case review would need. Reports only become necessary when you want an actual clinical opinion on your case, because no transplant team can assess someone from a paragraph. If you would rather not send documents through a website, say so and we will tell you what the alternatives are.

Can you delete everything you hold about me?

Yes. Write to us and say so. Because our legal basis for your medical information is your explicit consent, you do not have to give a reason and we do not get to weigh it against our interests. We delete the enquiry, the notes on it and the uploaded documents from storage rather than merely hiding them. If your case has already been sent to a hospital, we will tell you, because that hospital holds its own copy under its own law and you will need to ask them separately — we will give you the contact details to do it.

Will my medical information be sent to a hospital without me knowing?

No. Nothing is sent to any transplant centre until you have agreed to that specific centre. We tell you which hospital, in which country, before anything is transmitted, so that your agreement is to a real named recipient rather than to a category. If you agree to one centre and later want a second opinion elsewhere, that is a separate decision and a separate agreement.

Why is my data stored in the United States?

Because that is where our hosting provider runs the servers this platform is deployed on. We would rather tell you plainly than bury it. For readers in the EEA and the UK this is a restricted transfer, covered by Standard Contractual Clauses and, for the UK, the UK Addendum. If the location is a problem for you, contact us before sending anything sensitive and we will explain what we can do without it.

Do you use my enquiry for marketing?

No. We do not send marketing to people who came to us with a medical enquiry, we do not add you to a mailing list, and we do not pass your details to anyone selling anything. We contact you about your enquiry and nothing else. If you ever receive something from us that looks like marketing, tell us, because it is a mistake and we want to know about it.

Why is there no cookie banner on this site?

Because there is nothing to ask you about. The only cookie this site sets is a sign-in session for staff using the admin dashboard, which is strictly necessary and never set for ordinary readers. We run no analytics, no advertising pixels and no third-party embeds. Under the ePrivacy rules a strictly necessary cookie does not require consent, so a banner would be asking you to agree to nothing. If we add anything that does need consent, we will ask before setting it.

Who can I complain to if I am unhappy with your answer?

Your national data protection authority. In the EEA that is the supervisory authority of the country you live or work in; in the UK it is the Information Commissioner's Office; in Türkiye it is the Personal Data Protection Authority (KVKK). You do not need our permission, and you do not have to come to us first — though we would rather have the chance to fix it, and usually can.

The rules this policy is written to

The instruments below are the ones this policy applies. They are linked so you can check what we say against what they require, rather than taking our summary of them on trust.